Tips For Caregiver's
~WebMd
Friday, May 2, 2008
Asking Permission
While I was sitting in the kitchen, I heard Muddear yelling at Mike to open his bedroom door. After hearing her yell at him for a couple of minutes, I decided to go upstairs to investigate the problem. I found an indignant Muddear sitting in the hallway, again yelling at Little Mike to open his bedroom door.
"What's wrong Muddear?"
"Tell him he needs to open his door!"
"Why? He's changing clothes."
"He should have told me that he was changing clothes. I don't know what he's up to in there."
"Muddear, Little Mike lives here. That is his room. He does not have to ask to shut his bedroom door."
"Yes, he does. I don't know - he might have girls in there."
"Muddear, Mike is a kid. He is not allowed to have girls in the house or in his room."
"I don't know what's on his mind. He should have told me and you need to stop jumping down my back about it."
"Muddear, I am not fussing at you. But you need to leave Little Mike alone so he can finish changing his clothes. He just got out of the shower."
There was no convincing Muddear, so I made an excuse to go back downstairs. Hence, the right now blogging of this incident.
WOW! Little Mike just left to go to a friends and Muddear is still yelling at him. Imagine that...
Monday, April 28, 2008
Buying Oil
Sunday, March 30, 2008
All In A Day's Work
For the past week, when I arrived home from work, Muddear has been sitting patiently in her wheelchair at the top of the stairs waiting for her ride home. Oddly, whenever she sees me, she thinks I am the source of transportation. Unfortunately, the rest of the evening is filled with Muddear following or attempting to follow me around the house inquiring about when we are leaving. I have tried to explain on numerous occasions:
- Our relationship - grandmother/granddaughter;
- That she is retired;
- This is our home and we live together.
Nothing works. No matter what explanation I give, Muddear refuses to believe it and we continue to have the same conversation over and over and over again. I understand that this type of behavior is common among Dementia and Alzheimer's patients, however, it becomes frustrating for me after awhile. Nighttime is even worse. Muddear's agitation increases - it is obvious that she has no clue where she is or why she is here. Ultimately, she wants to go home.
Several days ago, Muddear began accusing me of lying about my identity. All hell broke loose when she saw me enter my bedroom. Muddear rolled into my bedroom to tell me that I was going to get myself in trouble for being in there.
"You gettin too big for your britches talkin about you own this and you own that! Girl you gon get yourself in trouble!"
Obviously, I was confused, but after talking to Muddear, I realized the true source of her angst. Muddear now thinks I am having an affair with the husband of the lady whose house she is responsible for cleaning! I was never able to convince her otherwise.
Sunday, March 16, 2008
Running Errands
Muddear was great! She ate cookies offered by the managers at the furniture store. She ate Gold Star Chili while I made numerous returns and exchanges at the mall. And accidentally locked us out of the car when Mike and I quickly ran into HH Greg to purchase a television. We were tickled that Muddear momentarily forgot what button to push to let us back into the car.
Overall Muddear had a really good time. It was wonderful to get out of the house WITH my darling husband than without him. We often spend little time together outside of the house, because one of us must stay at home with Muddear so the other can run errands. It was great once again to find pleasure in the mundane.
As the evening wore on, I could tell that Muddear was getting tired as we all were. During our last stop - HH Greg - Muddear mentioned that the bathroom was calling her name. She reasurred us that a special stop at a restaurant would not be necessary as long as we were heading straight home after this stop. Within 10 minutes after this conversation, we were pulling into the familiar spot in our driveway.
Muddear, looking quite alarmed, stated "I thought we were going home! I don't live here - I moved a couple of months ago!"
Go figure!
Tuesday, January 8, 2008
One Week And Counting
Nevertheless, Muddear and I had the oddest conversation last night. When asking her about her day, she explained that she had a visitor. Initially, I thought she was talking about Sharon, the aide until I realized that she was in fact NOT talking about the aide. According to Muddear, she was visited by the lady she used to work for. (huh?) When I inquired about this lady, Muddear said...
"I can't remember her name, but I used to work for her before I got sick. After I got better, I started working for her again."
What could I say other than..."Okay."
Thursday, January 3, 2008
Off Kilter!
This evening Muddear went around and round the mulberry bush arguing with Mike about how it was time for her to move so that she could be closer to her sons. This time it was Mike's turn to have that discussion. I am officially done for the next two days.
Needless to say, when asked "who will you stay with when you leave" - as she was demanding to leave at that exact moment, Muddear could not give a coherent answer. According to Muddear, Walter lived in a different state and Phil was not her son. Even better Phil was her daughter's son or Muddear's grandson. Mike tried to clear up the confusion by going down the family tree, to wit Muddear became irate and argumentative. "I KNOW WHO MY CHILDREN ARE! DON'T YOU TELL ME!"
Mike decided to drop the subject. That is until Muddear began calling him every 10 minutes to have the discussion yet again. This time, both Phil and Walter were her sons, but she had no clue as to who her other children had been. (I say that in past tense because they predeceased Muddear.)
As if this weren't enough, Granny started seeing things that didn't exist! According to Muddear, my two children (step) were unhappy when they entered her room and wanted to see their mother. Problem...neither were at home at the time. When I explained this to Muddear, she initially argued with me, then casually said..."I must have been hallucinating!"
Tuesday, November 20, 2007
Little White Lies
I quickly explained that she ate dinner at the same time. That when dinner was ready I made everyone's plate, including her plate, and served dinner to everyone. I went on to explain that in actuality, she had her food and had begun eating before I did.
"No that's not true," Muddear said. "I went down stairs and I saw you and the family eating before you gave me my food. Why is that?"
"Muddear, that is not true. You are in a wheelchair and cannot go up and down the stairs by yourself."
"Yes, I can. I just hold on to the bannister."
"Not by yourself without assistance."
"Yes, I can. I don't need your help. I just hold onto the bannister."
"Well, if that is the case, I would like for you to show me right now. If I am comfortable with you traveling up and down the stairs by yourself, then you can come downstairs and eat with us all of the time."
"Well, I didn't go all the way down. Just part of the way."
"That's okay. This is very exciting! You have never been able to go down the stairs without our help. I would really like to see you do it again."
"No, what I said was I can come downstairs with help. I'm in a wheelchair."
"Okay. Then you really didn't see us at the table eating dinner did you?"
"No, I just thought you were and that is different than normal."
Tuesday, November 13, 2007
Day or Night
When I arrived home from work Sharon explained that earlier in the day Muddear complained of being tired and wanted to take a nap, which she allowed. However after her nap, Muddear did not remember eating lunch - I think it is possible that upon waking up from the nap Muddear thought it was morning. Therefore, I was not surprised when Muddear began calling me, immediately after I entered the house, expressing the need to talk.
Per Muddear, Sharon did not feed her lunch. "Of course she did." I stated, only to have Muddear ask, "Well if she fed me lunch, why am I hungry?" To wit, I responded, "You are hungry because it is dinnertime. You ate lunch five (5) hours ago, if I were you I would be hungry too." Muddear seemed satisfied with that answer.
At 7:00 p.m. Muddear and I sat down to eat dinner. I am sure you can imagine my confusion when she asked, "Aren't you scared?"
"No, why would I be scared?"
"You know from the bad weather that's made it so dark outside."
"Muddear, there is no bad weather. It's dark outside because this is November and it's after 7:00 p.m."
"No, it's too early to be this dark."
"Don't worry, there is no bad weather. It is supposed to be this dark when it is almost winter."
"Okay."
Whether Muddear believed me or not, I will never know. I tend to think not. Especially when one hour later I overheard Muddear say to Mike..."Boy its dark outside." I chuckled as Mike once again explained that it is dark outside because it's nighttime.
All evening and well into the night, Muddear continued to comment about how "early" it is. Finally, around 11:00 p.m. I made her go to bed.
Hopefully, today Muddear will have it all sorted out.
Monday, November 5, 2007
Homecoming
Anyway, whenever Tommy comes home he always makes sure that he visits with Muddear. As always she initially doesn't recognize him, but that is rectified after a few minutes of conversation.
"Hey Muddear! How are you doing?"
"I'm fine."
"How old are you now?"
"I'm about 95. Just trying to make it to 100. So many have tried...and so many have failed!"
My brother was simply tickled by their conversation. You just never know what will come out of Muddear's mouth.
Sunday, November 4, 2007
I don't NEVER!
Friday night, Muddear became angry about the amount of time required to take her breathing treatment. She declared that she was NEVER taking that treatment again! I know this is not unusual...same story different day, but it was just the beginning.
Saturday during the day, Muddear managed to drop part of her housecoat into the bedside commode. Did I mention it was full of urine? In the very eloquent words of Charlie Brown, "Aarrgghh!"
Saturday night, as usual I dispensed Muddear's 8:00 p.m. medications. Afterwards, Muddear asked if I was going to sit with her for awhile, to wit I said, "yes, at least until after I give you your 9:00 p.m. medications." Suddenly, she became suspicious of the medication. You'd think I was trying to kill her! Apparently, in Muddear's world, she does not and has never taken two doses of medication at night. So after Saturday night...Muddear declared that she was NEVER going to take two doses of medication in one night. Just getting her to take the 9:00 p.m. medications required arguing.
Sunday morning began with a bang! First, I think the daylight savings time change threw off Muddear's internal clock. She was up extra early calling me. I made breakfast as usual so that she could take her morning medication without getting sick. Well that began the first argument of the day.
"If you had of asked me first you would have known that I don't eat breakfast!"
Of course I explained that the food was to ensure that the medication did not make her stomach sick. To wit Muddear said...
"My medication don't ever make me sick. Don't ever make me breakfast again in the morning! I NEVER eat breakfast!"
The calling continued all morning. At one point Muddear called me to help her use the bathroom.
"Muddear, why are you call me to help you use the bathroom? You don't need help going to the bathroom."
"I know, I just wanted you to come in my room."
"I will later, but right now I am lying down."
Interestingly enough, about 45 minutes later, Muddear was in the hallway and began to call me again saying she needed help going to her room. Yes, I wheel her into the room, but ask...
"Muddear, why are you calling me to push you into your room?"
"I need to go to the bathroom, but I don't know where it is."
"Yes, you do. You go to the bathroom everyday by yourself. You were right next to the bathroom."
"No, I don't. I ain't NEVER gone to the bathroom by myself. That's why I don't know where it is!"
If you think that it couldn't get worse, think again. When giving Muddear her wash up, she doesn't want to remove her t-shirt.
"Muddear, how am I supposed to wash you up if I can't remove your t-shirt?"
"I don't want' to be naked, I might catch cold."
"Muddear, I have to remove your t-shirt to finish your wash up."
"No you don't. I don't NEVER take all my clothes off when its cold!"
Well, its only 5:30 p.m. Sunday evening. Can this really continue ALL day?
Monday, October 1, 2007
Pain Medicine vs. Placebo
"...the pain is more than I can bear!" or
"...take me now Lord, if someone can't do something to help me with the pain!" or
"....please somebody help me, don't let me suffer."
However, as soon as Muddear S-W-A-L-L-O-W-S the Tylenol, she is completely healed. No complaints, no worries, no more pain. There is no pain medicine, especially in pill form that works that fast!
In light of this, Mike and I have been trying an experiment over the last week. I bought of bottle of vitamin C caplets. For the last week, whenever Muddear asks for pain medicine, we continue the same routine by asking, "What hurts and how long has it been hurting?" After Muddear's explanation, we retrieve two vitamin C caplets and dispense the "Tylenol" to Muddear. Would believe it if I told you, it works! We have witnessed the placebo effect firsthand - A placebo effect occurs when a treatment or medication with no therapeutic value (a placebo) is administered to a person and their symptoms improve.
It is truly amazing!
Sunday, September 30, 2007
Talking Crazy On Purpose?
Last night, in the middle of the night Muddear started yelling for help. What is it with the night time drama? As soon as I enter Muddear's room, I can tell that she is short of breath, but to prove a point, I ask her...
"Muddear, what's wrong?"
"Shortness of the breath."
"Well, what do you want me to do?"
"Give me something to help me breathe."
"I can't give you a breathing treatment. You told me earlier today that you are not taking breathing treatments anymore, because you don't experience shortness of breath. What should I do?"
"I didn't mean that. You know how it is, you get aggravated and you just say things that you shouldn't say. I bet you do the same thing too."
I started thinking...how often does she get aggravated and start talking crazy on purpose? Of course I gave Muddear the treatment - with no arguing!
Friday, September 28, 2007
Prescriptions, Doctors, and Friends
"After tonight, I am not takin' that treatment anymore."
"Muddear, why don't you want to take your medicine?"
"The doctor didn't give that to me, a friend did."
"Your friend cannot write you prescriptions."
"I know, that's not a prescription. A friend told me about it. I told the doctor and he give it to me. I don't really need it."
"Muddear the doctor will only prescribe medicine for you that you actually need. After your check-up a few years ago, it was prescribed to you. I will get the container so you can see it."
I take a few minutes to get the box that contains the vials of medicine used for breathing treatments.
"See Muddear, here is the label...it has a prescription number on it, your name and the doctor's name."
"I don't care what you say! A friend gave that to me!"
"Why don't you read it for yourself?"
"NO! I am not gonna read it! I don't wanna see it! I know where it came from - it was a doctor and he is dead now!"
Okay, I give up! I had to end this conversation before I ran away screaming!
Friday, June 8, 2007
Go Get Her...
I was downstairs blogging and Muddear was in her room. After hearing Muddear calling me, I grabbed my laptop and went to check on her. As usual, MacIntosh was hot on my heels. .jpg)